This weekend kicked off the MDA annual Clinical & Scientific Conference, bringing together the neuromuscular disease ...

Winters are hard for columnist Alyssa Silva — as is life with SMA. She reminds herself of the importance of finding light in ...

SMA patients want PROMs that focus on more than physical function, and that also assess mental health, sexual function, sleep ...

A study based on a survey of 50 adults linked poorer quality sleep with more depressive symptoms and respiratory issues in ...

In the "Wicked" film, columnist Kevin Schaefer sees a familiar and healthy depiction of wheelchair users that the stage ...

The three diagnostic tests for identifying genetic mutations associated with SMA met new European Union regulatory ...

Disease-modifying therapies (DMTs) may help lower the risk of children's bone fractures in spinal muscular atrophy (SMA), a ...

Hurricane Helene and recent storms have taken a toll on the tree that stands guard over columnist Helen Baldwin's late son's resting spot.

SMA Europe is funding five new research projects that are intended to advance understanding of spinal muscular atrophy (SMA) and guide the development of new therapies. The funding comes as part of ...

Madelyn Milave, who lives in Minnesota, was diagnosed with spinal muscular atrophy (SMA) type 2 at 18 months old in 2005. She shares how she learned to communicate her expectations to ensure her ...